Rare Yet Within Reach: Unlocking Hope with Advanced Therapies

Registration is Now Open!

While rare diseases may be "rare," the dawn of effective treatment is now within reach thanks to the rapid, day-to-day advancements in medical technology.

Breakthroughs in Advanced Therapies are steadily dismantling the "no cure" barriers of the past. This year’s World Rare Disease Day Symposium 2026 focuses on the translation of scientific research—exploring how to bring cutting-edge technology into clinical practice so that hope can finally become a reality for every patient.

We invite medical professionals, scientific researchers, industry representatives, and patient organizations to join this exchange. Whether you are a patient, a family member, or a member of the public interested in medical technology, this is an event you cannot miss!

Event Details
📅 Date: Saturday, March 7, 2026
🕘 Time: 09:00 – 17:00
 📍  Venue: Sheraton Hong Kong Hotel, 20 Nathan Road, Tsim Sha Tsui, Kowloon
📌 FREE Admission📌

📝 Register Now to Create a Brighter Future !
Please click the link below or scan the QR code on the poster to reserve your spot:
https://forms.gle/6h77MuDRKVJEwtYA8

 

Program Rudown
i) Morning Conference Session : 3/F Grand Ballroom
Languages: Cantonese and Mandarin (simultaneous interpretation)

09:00 - 09:10  Opening Remarks
09:10 - 09:20  Group Photo
09:20 - 09:40  A New Landscape of Genomic Medicine — Hong Kong’s Path Toward a Precision Health Future
09:40 - 10:10  Pathways in Rare Disease Drug Development and Insights for Future Strategic Planning
10:10 - 10:40  From Screening to Innovative Therapies — Hong Kong’s Role in Genomic Medicine Collaboration
10:40 - 11:00  Tea break
11:00 - 11:30  Introducing New Trends in Innovative Drugs and Medical Devices
11:30 - 12:00  Policy and Financing Innovation - Building a Sustainable Development Framework for Genomic Medicine in Hong Kong
12:00 - 12:40  Roundtable Forum: Treatment Accessibility - New Visions for Medical Financing

ii) Afternoon special sessions for rare diseases (14:00 – 17:00) : 4/F Sung Room I & II, Ming Room I & II and Ching Room
We will cover: Spinal Muscular Atrophy (SMA) *, Duchenne Muscular Dystrophy (DMD)*, Hemophilia*, Pulmonary Arterial Hypertension (PAH),Paroxysmal Nocturnal Hemoglobinuria (PNH), Achondroplasia (ACH), Hereditary Angiodema (HAE) and Patient sessions
* Cantonese and Mandarin (simultaneous interpretation)

Notes:
📌 A light lunch will be provided for all full-day conference participants.
📌 All participants (including accompanying caregivers) must complete registration.
📌 Registered participants will receive a confirmation email.
📌 Event photography will be featured on RDHK’s official website and social media platforms. Guests who prefer not to be photographed are encouraged to wear a mask or notify our staff upon arrival.