The precedent cases in recent years have shown that accelerating the inclusion of orphan drugs in the HA Drug Formulary and Safety Net is feasible. Therefore, RDHK hopes that the Government and the authorities concerned will learn from the successful experience and consider adopting the seven measures recommended below to optimise and regularise the access mechanism for orphan drugs.
Read more >>Since the current-term Government took office, new measures on rare diseases have been proposed in every policy address, including increasing the Safety Net support for orphan drugs, optimizing the Safety Net means test mechanism, establishing patient database, conducting public education, increasing manpower, supporting scientific research and clinical research......
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