RARE DISEASE HONG KONG

罕盟工作軼記

Subsidy Schemes: Genetic counselling, ECHO & cMRI

Human Library for Primary & Secondary Schools

Pilot Scheme of Subsidy for Healthcare Needs

Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

"Knowing ILD" webpage

Latest EventsView all >>

Latest NewsView all >>

Special Announcement 2025-07-30 Latest Announcement on Personnel Appointment of Rare Disease Hong Kong.
Rare Disease Hong Kong (RDHK) Announcement on the Postponement of the Annual Symposium 2025-07-21 Rare Disease Hong Kong (RDHK) Announcement on the Postponement of the Annual Symposium
Announcement of Resignation from Council Members 2025-07-10 關於機構理事辭任公告。

Event ArchivesView all >>

精神健康講座及藝術治療工作坊 2025-10-24 講師深入分享精神健康對病友與照顧者的重要性，並透過禪繞畫、摺紙與靜觀等藝術治療環節，讓參加者在創作中彼此陪伴、互相支持，感受療癒與連結的力量。
流沙畫工作坊 2025-10-22 以「正念」為主題，透過藝術與靜觀的融合，為罕見病患者及其照顧者打造一個身心療癒的空間。
提升醫療安全視野 —— 罕病照護真實面貌分享 2025-10-16 Amy 向衛生服務管理課碩士學生，分享罕見病患者及照顧者在醫療與生活照護上的真實處境與挑戰。

Community InformationView all >>

照顧者資訊網 2025-05-03 Social support 一個專為照顧者而設的網站，提供全面和最新的照護資訊。
Fees and charges reform for public healthcare 2025-04-14 Healthcare policy Information about HA's fees and charges reform
卓新力量 30 週年 - 決策支援你要知 2025-03-10 活動推介假如你喜歡藝術的話，不妨考慮參加這個老幼咸宜的活動。