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2024.09.09
2024 || 第十三屆中國罕見病高峰論壇
2024.08.25
傳媒小組訪問🎤腫瘤電場治療
2024.08.11
Rare Diseases Awareness Campaign 2024
2024.07.20
2024 ¦¦ 罕見病合作交流會
2024.07.21
【《罕見病 * 同理心》罕見病個案分享會】
2024.06.28 & 07.03
「罕故事」學校分享計劃 ~ 粉嶺救恩書院 及 九龍塘學校(中學部)
2024.06.15
The fifth Annual General Meeting & Tea Gathering
2024.06.08
🍃端午艾葉香囊工作坊🍃
2024.04.07
Rare Disease Public Education Programme ~ Column articles in Oriental Daily
2024.03.23
SMA病友🐉龍的約會
2024.03.22
「罕故事」學校分享計劃 ~ 荃灣官立中學
2024.03.09
春日甜蜜蜜🧁鬆餅與水果芭菲烹飪班
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