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2022.10.29
【罕病研討會2022 片段重溫】 第一節討論
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罕友與狗狗 ~ 互動會
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園藝體驗工作坊
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間質性肺病患者教育計劃 2022
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「織織復織織」工作坊
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罕見癌症公眾教育計劃 2021-2022
2022.06.11
FSHD Connect ~ No one has to face FSHD alone
2022.04.28
2022年世界罕病日活動
2022.03.31
2022年第一季「真人圖書館」系列活動
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