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2021.09.11
罕病專題講座:TTR類澱粉沉積症所引起的心肌病變 (TTR-CM)
2021.08.21
網上專題講座:神經肌肉疾病病人名冊及疫情應對
2021.07.24
專題講座:你的基因如何,你的治療也如何
2021.07.17
罕盟迎新日2021
2021.06.26
「游說工作多面體」工作坊
2021.06.15
肺動脈高壓公眾教育(二):社交媒體推廣
2021.05.05
肺動脈高壓公眾教育(一):小組傳媒訪問
2021.04.17
應對傳媒訪問實戰工作坊
2021.03.08
罕見疾病真人圖書館
2021.03.06
顏肩肱型肌肉萎縮症(FSHD)病人講座
2021.02.28
香港罕病藥物圓桌會議
2021.02.24
新春 GBM 同路人大笑瑜伽 Zoom 分享會
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