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2021.02.28「香港罕病藥物圓桌會議」精華片段 (二):香港現時的罕病措施有何問題?2021-02-28
香港公共醫療政策的宗旨是「確保不會有市民因為經濟困難而得不到適當的醫療服務」,但這是否與現實相符呢?現時醫療決策傾向於無差異地 (equality)把醫療資源平均分配,那是否真正的公平(Equity) ?...
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  • 2021.02.28「香港罕病藥物圓桌會議」精華片段 (二):香港現時的罕病措施有何問題?
  • 2021.02.28「香港罕病藥物圓桌會議」精華片段 (一):人命何價?
  • 2021.01.13為幼年期病發SMA患者提供治療
  • 2021.01.03成人脊髓肌肉萎縮症(SMA)患者的心聲
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  • 2020.10.17「2020世界罕病日網上研討會」夥伴與合作(二)
  • 2020.10.17「2020世界罕病日網上研討會」夥伴與合作(一)
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  • About RDHK
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