希望香港可參考內地近年推出的罕見病政策,並發揮粵港澳大灣區的優勢,以改善藥物可及性,減低藥物費用,惠及更多有需要的病人。
Read more >>The precedent cases in recent years have shown that accelerating the inclusion of orphan drugs in the HA Drug Formulary and Safety Net is feasible. Therefore, RDHK hopes that the Government and the authorities concerned will learn from the successful experience and consider adopting the seven measures recommended below to optimise and regularise the access mechanism for orphan drugs.
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