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「會員天地」歡迎罕盟會員投稿
罕盟網頁現已增設「會員天地」,作為會員分享個人感想、經驗和展示才藝的平台,旨在鼓勵會員向公眾傳遞正面訊息,一起發放正能量。
VHL患者的出路
盼望新藥可儘快納入安全網,讓VHL患者不再無助!
從小朋友視覺看「殘疾」這兩個字
兒子患有「先天手差異」的Sophie,分享她作為家長的體會。
罕盟十周年紀念月曆 ♥ 十二位插畫作者的故事
十二幅月曆插畫,十二個故事。
我的驕傲
一般人都會認為,患病的家人是一種負擔;但對Rebecca來說,患病的女兒不但成為了她的人生導師,更是她的驕傲。
與「狼」共舞
被罕病糾纏多年的好鈞,不但沒有放棄,而且越戰越勇,誓要盡力活好每一天!
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