A-
A
A+
繁
EN
捐助支持
加入本會
登記做義工
MENU
About RDHK
About Us
Organizational Structure
Organization Chart
Council & Committees
Advisors
Articles of Association
Annual Reports & Financial Reports
Our Members
List of Organisational Members
《Code of Practice》
News & Events
RDHK News
Latest Events
Latest News
Event Archives
Galleries
Publications
RareCare
Written Submissions / Press Releases
RareChat
10th Anniversary Commemorative Issue
Others
About Rare Diseases
What is a Rare Disease?
What is a Patient Registry?
Rare Disease Wiki
Rare Disease Bookshelf
Local Rare Disease Patient Groups
International Rare Disease Patient Groups
Subsidy Schemes
Community Support
Community Information
Reference Information
Global Links
Participation & Support
Become a Member
Full Member & Ordinary Member
Organizational Member
Become a volunteer
Members' Corner
Volunteer Zone
Donation
One-off / Monthly Donation
Contact Us
捐助支持
加入本會
登記做義工
News & Events
Event Archives
與立法會議員林哲玄醫生會面
4月29日罕盟上週十分榮幸與立法會
林哲玄議員
會面。除了討論年初實施的醫療收費改革,更邀請了
肺動脈高壓
(
PAH
) 患者 Michelle 及心臟科專科阮嘉駿醫生,親身分享罕病患者在治療路上的迫切需要。
衷心感謝林議員的正面回應,表達會積極關注優化藥物審批程序,並溫暖地為 Michelle 打氣。罕盟亦會繼續努力,與各界合力推廣,將醫療資源精準投放於基層及昂貴治療,確保真正有需要的病友得到支援。