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香港電台節目《#千禧年代》
#肺動脈高壓
(
#PAH
)近日備受社會大眾關注,罕盟代理會長賴家衞先生 (Terry) 亦受邀出席香港電台節目《千禧年代》,就PAH嚴重患者的醫療權益接受專訪。
Terry在訪問中分享了PAH患者在接受傳統療法時所面對的副作用,並對比轉用創新療法後,患者在生活質素與病情控制上的顯著轉變。罕盟期望社會及政府正視創新藥物為罕見病患者帶來的生命轉機,並懇請當局進一步優化藥物資助政策,確保患者能適時獲得最有效的治療方案。
歡迎點擊以下連結,重溫訪問內容(1:09:50 - 1:17:15):
https://www.rthk.hk/....../talkabout/episode/1085688