Background：

Neuromuscular Disorders (NMDs) is a collection of diseases that affect one of the neuromuscular units. Currently, there has been no effective long-term therapy for most types of NMDs. Therefore, medical research is very important for NMD patients. Since June 2019, Hong Kong Neuromuscular Disorders patient registry (HKNMDPR) is established which collects clinical information about the patients to build a centralized database. The purpose of the registry is to facilitate the team's search for eligible patients for clinical trials and help us better understand the conditions and characteristics of different NMDs.

Organization：

Department of Paediatrics and Adolescent Medicine, Li Ka Shing Faculty of Medicine, University of Hong Kong

Project Title：

Establishment of Hong Kong Neuromuscular Disorders patient registry (HKNMDPR)

Patients covered：

Confirmed cases of NMD patients

(For the detailed conditions covered, please review at https://neuromusreg.hkuhealth.com/listCondition

Study period：

2019-07-01 to 2024-07-01

Study method:

Through the online survey (Takes about 15 minutes)

Online registration:

Link: https://neuromusreg.hkuhealth.com/joinUs

Participants will be contacted through email after registration for suitable clinical studies or follow-up questions on the patient registry.

RDHK sincerely invites NMD patients to join the patient registry through online registration. If you have any questions, please contact us at 5528-9600.

Thank you very much!