A-
A
A+
繁
EN
捐助支持
加入本會
登記做義工
MENU
About RDHK
About Us
Organizational Structure
Organization Chart
Council & Committees
Advisors
Articles of Association
Annual Reports & Financial Reports
Our Members
List of Ｏrganisational Ｍembers
《Code of Practice》
News & Events
RDHK News
Latest Events
Latest News
Event Archives
Galleries
Publications
RareCare
Written Submissions
RareChat
Others
About Rare Diseases
What is a Rare Disease?
What is a Patient Registry?
Rare Disease Wiki
Rare Disease Bookshelf
Local Rare Disease Patient Groups
International Rare Disease Patient Groups
Subsidy Schemes
Community Support
Community Information
Reference Information
Global Links
Participation & Support
Become a Member
Full Member & Ordinary Member
Organizational Member
Become a volunteer
Members' Corner
Volunteer Zone
Donation
One-off / Monthly Donation
Contact Us
捐助支持
加入本會
登記做義工
News & Events | Publications
Written Submissions
敦促政府正視療效研究數據 盡快安排成年脊髓肌肉萎縮症（SMA）患者用藥
捐助支持
加入本會
登記做義工
捐助支持
加入本會
登記做義工