11 June 2022

Content:
1. Overview of Facio-Scapulo-Humeral Muscular Dystrophy (FSHD)
2. FSHD research in Hong Kong & its importance
3. FSHD patient groups around the world & the latest drug development發
4. Support & advocacy for rare disease patients in Hong Kong

Speakers:
Dr Shirley PANG, Honorary Clinical Associate Professor, Department of Medicine, LKS Faculty of Medicine, HKU
Dr Sophelia CHAN, Clinical Assistant Professor, Department of Paediatrics and Adolescent Medicine, HKU
Ms June KINOSHITA, Director of Research and Patient Engagement, FSHD Society
Mr KP TSANG, Chairman, Rare Disease Hong Kong