To align with the global observance of World Rare Disease Day (WRDD), RDHK organizes meaningful public education initiatives every year to raise awareness of the rare disease community. One of this year's key focuses is to highlight the resilience of rare disease patients in the face of adversity, fostering greater understanding and respect for their circumstances. Moreover, patients also have the opportunity to express their gratitude to healthcare professionals, recognizing their expertise and contributions in the diagnostic and treatment processes, and strengthening mutual trust and connection.

Rare Disease Awareness Campaign 2025 included:

1. “More than you can imagine” promotional series

• • RDHK invited five children with rare diseases to participate in the filming of a promotional series. The footage was edited into a 3-minute main video introducing rare diseases, along with five individual 2-minute short videos sharing each child's story of pursuing their dreams.
  • The main video was published on RDHK’s website, Facebook, Instagram, LinkedIn and YouTube on 28 February 2025.
    
    
    
    
  • Individual 2-minute short videos (Please click the image to watch the video) :
     
    
    
    
  • The six videos collectively reached nearly 500,000 views.
    
    

2. “Thanksgiving and sharing ceremony”

• • On April 29, RDHK hosted the “Thanksgiving and sharing ceremony”, bringing together around 30 participants, including healthcare professionals from the Hong Kong Children's Hospital, rare disease patients, and their families. In a warm and heartfelt atmosphere, patients and their families personally expressed their gratitude to the medical staff, shared their journeys of battling illness, and celebrated the powerful bond and solidarity between patients and healthcare providers.
    
    
    
  • Media Coverage
    • Oriental Sunday
    • So Fit So Good
      
      

3. Social Media Campaign partnering with Key Opinion Leaders (KOLs)

• • In late April, RDHK invited four KOLs to promote the “More than you can imagine” video series, aiming to sustain the campaign’s overall momentum. By leveraging the credibility and influence of these digital voices, RDHK successfully reached a broader audience, particularly among younger demographics. This initiative aimed to enhance public awareness of rare diseases and spark continued engagement and emotional resonance on social media, further reinforcing the core message of rare disease advocacy.
    • HiEggo (YouTube | Facebook)
    • Akina Fong (Facebook | Instagram)
    • Stephanie Ho (Facebook)
    • Snail tszkin (YouTube)

Special thanks are given to the following companies for their invaluable support of this project (in alphabetical order)：

• Amgen Hong Kong Ltd.
• AstraZeneca Hong Kong Ltd.
• Bayer HealthCare Ltd., Hong Kong
• BeiGene (Hong Kong) Co., Ltd.
• BGI Health (HK) Company Limited
• Biogen Hong Kong Ltd.
• BioMarin Pharmaceutical Inc.
• Boehringer Ingelheim (HK) Ltd.
• CSL Behring Asia Pacific Ltd.
• DKSH Hong Kong Ltd.
• GlaxoSmithKline Ltd.
• HutchMed (HK) Ltd.
• Ipsen Pharma (Hong Kong)
• Lee's Pharmaceutical Hong Kong Ltd.
• Medison Pharma Hong Kong Limited
• Novartis Pharmaceuticals (HK) Ltd.
• Pfizer Corporation Hong Kong Ltd.
• Roche Hong Kong Ltd.
• Sanofi Hong Kong Ltd.
• Takeda Pharmaceuticals (HK) Ltd.