A-
A
A+
繁
EN
捐助支持
加入本會
登記做義工
MENU
About RDHK
About Us
Organizational Structure
Organization Chart
Council & Committees
Advisors
Articles of Association
Annual Reports & Financial Reports
Our Members
List of Organisational Members
《Code of Practice》
News & Events
RDHK News
Latest Events
Latest News
Event Archives
Galleries
Publications
RareCare
Written Submissions
RareChat
Others
About Rare Diseases
What is a Rare Disease?
What is a Patient Registry?
Rare Disease Wiki
Rare Disease Bookshelf
Local Rare Disease Patient Groups
International Rare Disease Patient Groups
Subsidy Schemes
Community Support
Community Information
Reference Information
Global Links
Participation & Support
Become a Member
Full Member & Ordinary Member
Organizational Member
Become a volunteer
Members' Corner
Volunteer Zone
Donation
One-off / Monthly Donation
Contact Us
捐助支持
加入本會
登記做義工
News & Events | Publications
Written Submissions
Select
— All —
2024
2023
2022
2021
2020
2019
2018
2017
2016
脊髓肌肉萎縮症(SMA)成年患者試驗性用藥方案
File download
新冠疫情令罕病患者健康及經濟惡化 團體呼籲當局迅速有效應對
File download
敦促政府正視療效研究數據 盡快安排成年脊髓肌肉萎縮症(SMA)患者用藥
File download
昂貴藥費分擔機制執行情況調查撮要
File download
2019年施政報告意見書
File download
2019年施政報告意見書(附件一)
File download
2019年施政報告意見書(附件二)
File download
2019年施政報告意見書(附件三)
File download
特發肺纖藥物獲准納入安全網
File download
《香港康復計劃方案》制定建議意見
File download
就撒瑪利亞基金和關愛基金醫療援助項目經濟審查機制的檢討結果意見書
File download
2018年施政報告意見書
File download
<上一頁
1
2
3
4
下一頁>