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2023
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公佈中大最新脊髓肌肉萎縮症患者生命質量研究 及早提供治療 患者、家人和社會受惠 呼籲政府支援25歲以上病患者 提供更人性化的醫療和護理
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Letter to the Secretary for Health
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Submission on the Public Consultation for the 2022 Policy Address (Chinese)
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Submission on the Public Consultation for the 2022 Policy Address
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Optimising and Improving Access Mechanism for Orphan Drugs (CHI)
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Optimising and Improving Access Mechanism for Orphan Drugs (ENG)
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聯合國大會通過罕病決議案 病人組織呼籲港府訂定國際接軌罕病政策
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Submission on the 2021 Policy Address (Chinese)
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Submission on the Public Consultation for the 2021 Policy Address
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醫院管理局「智友站」公眾教育成效調查報告和建議(全文)
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醫院管理局「智友站」公眾教育成效調查報告和建議(簡報)
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呼籲政府接納「照顧差異、實踐公平」的新建議
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