RARE DISEASE HONG KONG

罕盟工作軼記

Subsidy Schemes: Genetic counselling, ECHO & cMRI

Human Library for Primary & Secondary Schools

Pilot Scheme of Subsidy for Healthcare Needs

Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

"Knowing ILD" webpage

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Subsidy Scheme for Cardiac Magnetic Resonance Imaging for Patients with Fabry Disease 2024-11-01 本計劃為合資格的法布瑞氏症患者提供心臟磁力共振造影檢服務的全費資助。
Subsidy Scheme for Genetic Counselling Services ─ Fabry and Pompe Disease 2024-09-28 罕盟推出「法布瑞氏症及龐貝氏症遺傳諮詢服務資助計劃」，為有需要的合資格患者和家人提供九個月內無限次數的遺傳諮詢服務的資助，每名申請人的資助金額上限為港幣$10,500。
Subsidy Scheme for Echocardiographic Assessment of Patients with Fabry Disease 2024-06-30 本資助計劃為合資格的法布瑞氏症患者提供心臟超聲波檢查服務的全費資助。

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RDHK Networking Lunch🍸2025 2025-03-06 An occasion for the industry partners to mingle and learn about what RDHK accomplished last year and its plan for the coming year.
🌺鮮花貼畫工作坊🌺 2025-02-26 這是一個帶領參加者踏上療癒身心的藝術工作坊。
檸檬寶寶音樂會🎶 2025-02-25 罕盟一行五人懷著期待的心情，踏上前往杭州的旅程，參與由病痛挑戰基金會與阿里巴巴公益、阿里健康公益共同舉辦的「一切只為你」Sing For Rare 2025 罕見病公益主題音樂會。

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