RARE DISEASE HONG KONG

Subsidy Schemes: Genetic Counselling Services (Fabry and Pompe Disease) and ECHO Assessment of Patients with Fabry Disease

RDHK Approaching the 10th Anniversary

Human Library for Primary & Secondary Schools

Pilot Scheme of Subsidy for Healthcare Needs

Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

"Knowing ILD" webpage

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紅山❌罕盟🎉聖誕歡樂派對日期 : 2024年12月14日（六）時間 : 下午2:30 – 5:00 地點 : 中環中心地下H6 conet
醫療專題講座暨會友聚會日期 : 2024年12月7日（六）時間 : 上午10時 - 下午1時地點 : 觀塘海濱道萬兆豐中心
Rare Disease Symposium 2024 Date : 30 Nov 2024（Sat） Time : 8:30 am – 5:30 pm Venue : Nina Hotel Tsuen Wan West

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Subsidy Scheme for Genetic Counselling Services ─ Fabry and Pompe Disease 2024-09-28 罕盟推出「法布瑞氏症及龐貝氏症遺傳諮詢服務資助計劃」，為有需要的合資格患者和家人提供九個月內無限次數的遺傳諮詢服務的資助，每名申請人的資助金額上限為港幣$10,500。
Subsidy Scheme for Echocardiographic Assessment of Patients with Fabry Disease 2024-06-30 罕盟推出「法布瑞氏症心臟超聲波檢查服務資助計劃」，為合資格的法布瑞氏症患者提供心臟超聲波檢查服務的全費資助。
醫管局德政藥物到位造福病人 2024-05-13 醫院管理局公佈其最新藥物名冊的更新和管理原則、新藥審批機制（一般稱為「1+」機制）等政策措施

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Rare Disease Symposium 2024 2024-12-04 Theme: Living Connected, Brightens Living with the Rare
RDHK 10th Anniversary Gala Dinner 2024-12-04 It was an evening of fun and friendship, where everyone, whether they were new friends or old friends, exchanged ideas and made unforgettable memories.
理財講座及交流午宴 2024-11-16 罕盟與史賓士基金的年度大型活動。

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