RARE DISEASE HONG KONG

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Rare Disease Public Education Programme ~ Column in the Health Section of Oriental Daily News

Nursing Material Donation Matching Programme

Health Equity Campaign

Pilot Subsidy Scheme on Nursing Materials

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Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

"Knowing ILD" webpage

RDHK Transitional Emergency Relief Programme

Genetic Counselling Service Support Programme for Fabry & Pompe

Latest EventsView all >>

The Fourth Annual General Meeting of RDHK cum Tea Gathering Date：17 June 2023（Sat） Time：2:30 pm Venue：Ngau Tau Kok Swatow Baptist Church
神經纖維瘤𝐈型(𝐍𝐅𝟏)病友支援課程日期：2023年5月7日（星期日）時間：下午2時30分至4時30分地點：H6 Conet (中環中心)
逆向而生 - 園藝活動日期：2023年4月22日（星期六）時間：下午2時30分至5時正地點：長沙灣東京街12號麗閣商場地下29號舖

Latest NewsView all >>

Nursing Material Donation Matching Programme 2023-05-08 你捐$1，罕盟也會捐$1，請齊來支持罕病患者。
Pilot Subsidy Scheme on Nursing Materials 2023-05-04 Subsidised items in the 1st phase: Silver-containing or non-adherent dressings, Phenyl-free food powder & supplements and Soft meals supplied by social welfare organisations
「罕盟護理物資資助先導計劃」問卷調查 2023-02-09 邀請罕盟基本會員填寫網上問卷。

Event ArchivesView all >>

神經纖維瘤一型病友支援課程 2023-05-11 一個為「神經纖維瘤一型」患者和照顧者度身訂造的課程。
逆向而生 ~ 園藝活動 2023-04-22 利用棄置膠樽製作出懸吊植物盆栽，喚起人重塑生命的新意義和價值。
Small Group Media Interview ~ Idiopathic multicentric Castleman disease (iMCD) 2023-03-10 罕見病iMCD所引起的症狀與其他疾病容易混淆，故誤診率較高，五年死亡率亦較其他常見惡性腫瘤高。

Community InformationView all >>

Instructions for public hospital visitors and visiting arrangement 2023-03-24 Hospital visit Public hospitals lift all testing requirements for visitors.
Webinar ~ The Second Hong Kong Epidermolysis Bullosa Meeting 2023-02-15 Rare Disease Webinar The Second Hong Kong Epidermolysis Bullosa Meeting
醫管局加強支援社區確診病人 2022-04-03 COVID-19 確診新冠病毒病的市民只需下載或更新醫管局手機程式「HA Go」，便可在無註冊成為「HA Go」會員的情況下，預約指定診所服務。