A-
A
A+
繁
EN
捐助支持
加入本會
登記做義工
MENU
About RDHK
About Us
Organizational Structure
Organization Chart
Council & Committees
Advisors
Articles of Association
Annual Reports & Financial Reports
Our Members
List of Organisational Members
《Code of Practice》
News & Events
RDHK News
Latest Events
Latest News
Event Archives
Galleries
Publications
RareCare
Written Submissions / Press Releases
RareChat
10th Anniversary Commemorative Issue
Others
About Rare Diseases
What is a Rare Disease?
What is a Patient Registry?
Rare Disease Wiki
Rare Disease Bookshelf
Local Rare Disease Patient Groups
International Rare Disease Patient Groups
Subsidy Schemes
Community Support
Community Information
Reference Information
Global Links
Participation & Support
Become a Member
Full Member & Ordinary Member
Organizational Member
Become a volunteer
Members' Corner
Volunteer Zone
Donation
One-off / Monthly Donation
Contact Us
捐助支持
加入本會
登記做義工
Community Information
All
病人和成員
研究
宣傳
行業
醫療
特色的新聞
新聞稿
Dedicated webpage
2024-02-17
《認識肺纖維化》專題網頁
Free consultation
2024-01-21
「永遠同行」癌症專科義診計劃
Hospital visit
2023-03-24
Instructions for public hospital visitors and visiting arrangement
Rare Disease Webinar
2023-02-15
Webinar ~ The Second Hong Kong Epidermolysis Bullosa Meeting
Medications news
2021-10-23
治療SMA口服藥「恩恤用藥計劃」趕及在港註冊前推出
專題小冊子
2021-10-12
認識罕見疾病:陣發性夜間血紅素尿症
Research
2021-08-19
Hospital mortality in patients with rare diseases during pandemics: lessons learnt from the COVID‑19 and SARS pandemics
2021.06.22
2021-07-18
改善罕病藥物可及性的建議
News
2021-07-02
【HAE】病人組織促港府為患者提供免費藥物