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病人和成員
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學術研究
2024-10-19
調查邀請:全球腦癎需求研究
Research
2021-08-19
Hospital mortality in patients with rare diseases during pandemics: lessons learnt from the COVID‑19 and SARS pandemics
Survey on Rehabus
2021-08-18
調查邀請：復康巴士服務之個人需求的評估系統研究
2021.06.22
2021-07-18
改善罕病藥物可及性的建議
Patient registry
2021-04-25
[Invitation] Hong Kong NMD Patient Registry
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