RARE DISEASE HONG KONG

MENU

捐助支持
加入本會
登記做義工

Community Information

病人和成員

特色的新聞

Hospital visit
2023-03-24
Instructions for public hospital visitors and visiting arrangement
Rare Disease Webinar
2023-02-15
Webinar ~ The Second Hong Kong Epidermolysis Bullosa Meeting
Medications news
2021-10-23
治療SMA口服藥「恩恤用藥計劃」趕及在港註冊前推出
專題小冊子
2021-10-12
認識罕見疾病：陣發性夜間血紅素尿症
Research
2021-08-19
Hospital mortality in patients with rare diseases during pandemics: lessons learnt from the COVID‑19 and SARS pandemics
Charity
2021-08-19
「願望集氣場」慈善市集
Survey on Rehabus
2021-08-18
調查邀請：復康巴士服務之個人需求的評估系統研究
City Tour
2021-07-21
Rare假期！尖沙咀線上社區遊！
Advocacy
2021-07-18
「罕有不罕見」之《3cm》放映會
Charity
2021-07-09
【慈善籌款電影】媽媽的神奇小子
News
2021-07-02
【HAE】病人組織促港府為患者提供免費藥物
Patient registry
2021-04-25
[Invitation] Hong Kong NMD Patient Registry

<上一頁 1 2 下一頁>