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2021-10-12
認識罕見疾病：陣發性夜間血紅素尿症
Research
2021-08-19
Hospital mortality in patients with rare diseases during pandemics: lessons learnt from the COVID‑19 and SARS pandemics
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2021-08-19
「願望集氣場」慈善市集
Survey on Rehabus
2021-08-18
調查邀請：復康巴士服務之個人需求的評估系統研究
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2021-07-21
Rare假期！尖沙咀線上社區遊！
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2021-07-18
「罕有不罕見」之 《3cm》放映會
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2021-07-09
【慈善籌款電影】媽媽的神奇小子
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2021-07-02
【HAE】病人組織促港府為患者提供免費藥物
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2021-04-25
[Invitation] Hong Kong NMD Patient Registry
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