About RDHK | Organizational StructureCouncil & Committees
The First Council
  • Chairman

    Mr. TSANG Kin Ping (Patient with Retinitis Pigmentosa)

    President, Retina Hong Kong;

    Vice Chairman, the Hong Kong Joint Council for People with Disabilities;

    Vice Chairman, Hong Kong Guide Dogs Association;

    Member, Rehabilitation Service Committee, the Hong Kong Society for the Blind;

    Member, Ethics Committee, Hong Kong Doctors’ Union;

    Council Member, Rare Disease International;

    Treasurer, Asia Pacific Alliance for Rare Disease Organizations.

  • Vice-Chairman (Internal Affairs)

    Ms. YUEN Pui Ling, Rebecca (Family of Tuberous Sclerosis Complex)

    Founder Chairman Tuberous Sclerosis Complex Association of Hong Kong

  • Vice-Chairman (External Affairs)

    Mr. TO Kan Chong, Ken

    Committee Member,Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

    Patient Representative,Chinese Huntington's Disease Network-

    Hong Kong's Representative ,International Huntington's Association -

  • Honourary Secretary

    Ms. WONG Yuen Ping, Maria (Patient with Myasthenia Gravis)

    The Special Education Society of Hong Kong - Honorary Permanent Advisor

    Centre for Advancement in Inclusive and Special Education, Faculty of Education, The University of Hong Kong-Research Associate

    Families of SMA(Spinal Muscular Atrophy) Charitable Trust -Executive Committee Member

  • Honourary Treasurer

    Mr. LEUNG Chat Kan, Jackie (Patient with Cushing Syndrome)

    Retina Hong Kong – Vice Chairman

  • Council Member (*in alphabetic order of surname)

    Professor Danny CHAN

    S Y and H Y Cheng Professor in Stem Cell Biology and Regenerative Medicine, HKU

    Assistant Dean (Research Postgraduate Studies), LKS Faculty of Medicine, HKU

    Mr. CHOW Kuen Tai (Family of Tuberous Sclerosis Complex)

    Registered Nurse

    Scout Association of Hong Kong, Hong Kong Island Region, Regional Scouter

    Mr. FUNG Pun

    Internal Vice Chairman Hong Kong Spinocerebellar Ataxia Association

    Ms. TSUI Kong King, Helen (Family of Rett Syndrome)

    Green Grass Notes, Founder Chairman

    Ms. WONG Man Yee

    Founder, Hong Kong Health Care Alliance(Social Enterprise)

    Advisor, Continuing Education Department of YWCA

    Panel member, Christian Action Training Services Division Trade Advisory Committee

    Dr. Byron Shiu

    Honorary Treasurer, Primary Immunodeficiency League

  • Scientific & Medical Advisory Committee (SMAC)

    Dr. Sarah Wynn

    Information Officer, Unique (rare chromosome & gene disorder support group)

    Trustee, Genetic Alliance UK

    Member, Association of Genetic Nurses and Counsellors (AGNC) UK

    Member, British Society for Genetic Medicine (BSGM), UK

    Elected Member, Royal Society of Biology, UK

    Member, Asia-Pacific Society of Human Genetics (APSHG)

    PPV (Patient and Public Voice) representative on the Rare Disease Genetic Test Directory

    PPV representative on the BSGM ethics and policy committee

    Professor Danny CHAN

    S Y and H Y Cheng Professor in Stem Cell Biology and Regenerative Medicine, HKU

    Assistant Dean (Research Postgraduate Studies), LKS Faculty of Medicine, HKU

    Dr. Byron Shiu

    Honorary Treasurer, Primary Immunodeficiency League

    Dr. Brian Chung

    Clinical Associate Professor, Department of Paediatrics and Adolescent Medicine, LKS Faculty of Medicine, HKU