A- A A+
繁EN
MENU
  • 捐助支持
  • 加入本會
  • 登記做義工
About RDHK | Organizational StructureCouncil & Committees
The Third Council

  • Chairman

    Mr. TSANG Kin Ping (Patient with Retinitis Pigmentosa)

    President, Retina Hong Kong;

    Vice Chairman, the Hong Kong Joint Council for People with Disabilities;

    Member, Rehabilitation Service Committee, the Hong Kong Society for the Blind;

    Member, Ethics Committee, Hong Kong Doctors’ Union;

    Council Member, Rare Disease International;

    Treasurer, Asia Pacific Alliance for Rare Disease Organizations.

  • Vice-Chairman (Internal Affairs)

    Ms. Rebecca YUEN (Family member of Tuberous Sclerosis Complex patient)

    Founder Chairman, Tuberous Sclerosis Complex Association of Hong Kong

  • Vice-Chairman (External Affairs)

    Mr. Davy WONG (Patient with Hereditary Angiodema)

    Chairman, The Hong Kong HAE Patient Group

  • Honorary Secretary

    Ms. Helen TSUI (Family member of Rett Syndrome patient)

    Founder Chairman, Green Grass Notes 

  • Honorary Treasurer

    Mr. Jackie LEUNG (Patient with Cushing Syndrome)

     Vice President, Retina Hong Kong

  • Council Member (*in alphabetic order of surnames)

    Professor Danny CHAN (Scientist)

    Senior Advisor（Policy and Governance）, School of Biomedical Sciences, HKU

    S Y and H Y Cheng Professor in Stem Cell Biology and Regenerative Medicine, HKU

    Director（Education and Development of Research Integrity）, School of Biomedical Sciences, HKU

    Mr. Ronald CHOW (Family of Tuberous Sclerosis Complex)

    Registered Nurse

    Regional Scouter, Scout Association of Hong Kong, Hong Kong Island Region

    Sam HO（Patient with Wilson’s Disease）

    Vice-chairman, Hong Kong Wilson's Disease Association

    Mr. Terry LAI (Patient with Pompe Disease)

    Vice-chairman, Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group

    Raymond LEUNG（Patient with Amyotrophic Lateral Sclerosis）

    Founder, ALScare Christian Association

    Ms. Amy WONG (Registered social worker)

    Founder, Hong Kong Health Care Alliance(Social Enterprise)

    Advisor, Continuing Education Department of YWCA

    Panel member, Christian Action Training Services Division Trade Advisory Committee

  • Scientific & Medical Advisory Committee (SMAC)

    Dr. Brian CHUNG (Chairman)

    Clinical Associate Professor, Department of Paediatrics and Adolescent Medicine, LKS Faculty of Medicine, HKU

    Chief Medical and Scientific Officer, Hong Kong Genome Institute

    Professor Danny CHAN

    Senior Advisor（Policy and Governance）, School of Biomedical Sciences, HKU

    S Y and H Y Cheng Professor in Stem Cell Biology and Regenerative Medicine, HKU

    Director（Education and Development of Research Integrity）, School of Biomedical Sciences, HKU

    Professor Dong DONG

    Assistant Professor, JC School of Public Health and Primary Care Faculty of Medicine, Chinese University of Hong Kong

    Professor Shirley LI

    Assistant Professor, Department of Medicine, and Department of Pharmacology & Pharmacy, LKS Faculty of Medicine, HKU

    Dr. Byron SHIU

    Honorary Treasurer, Primary Immunodeficiency League

    Dr. Sarah WYNN

    Chief Executive Officer, Unique (rare chromosome & gene disorder support group)

    Trustee, Genetic Alliance UK

    Member, Association of Genetic Nurses and Counsellors (AGNC) UK

    Member, British Society for Genetic Medicine (BSGM), UK

    Elected Member, Royal Society of Biology, UK

    Member, Asia-Pacific Society of Human Genetics (APSHG)

    PPV (Patient and Public Voice) representative on the NHS Genomics Clinical Reference Group (CRG)

    PPV representative on the BSGM ethics and policy committee

Copyright © Rare Disease Hong Kong Limited. All rights reserved.