《認識肺纖維化》專題網頁

為提升大眾對肺纖維化疾病的認識，罕盟特地推出相關專題網頁，並不時作出更新。

Webinar ~ The Second Hong Kong Epidermolysis Bullosa Meeting

The Second Hong Kong Epidermolysis Bullosa Meeting

Orphanet

Orphanet was established in France by the INSERM (French National Institute for Health and Medical Research) in 1997. It is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Link

International Rare Diseases Research Consortium (IRDiRC)

IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare diseases by the year 2020... Link