RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 21 January 2026）

Total Members: 1,012

Full Members: 875

Individual: 866

Organizational: 9

Ordinary Members: 137

Types of rare diseases: 263

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

261X-linked Myotubular Myopathy (XLMTM) (肌小管病變)

262X-linked Retinoschisis (XLRS) (Genetic Disorder)

263X-linked Thrombocytopenia (XLT) (Genetic Disorder)

**The above types of diseases were provided by patients or their families at the time of membership registration.