關於「罕盟」我們的會員
各類會員人數(截至2024年1月29日為止)
會員總數: 782
基本會員人數: 695
個人會員人數: 686
團體會員人數: 9
普通會員人數: 87
罕見病類總數: 216
罕見疾病名稱
174Sacral Chordoma (骶骨脊索瘤)
175Schaaf-Yang Syndrome (SYS) (Schaaf-Yang症候群)
176Schinzel Giedion Syndrome (SGS) (Schinzel Giedion綜合症)
177Sciatic Nerve Tumors / Schwannoma (坐骨神腫瘤)
178SCN1A Syndrome (Genetic Disorder)
179SCN2A Syndrome (Genetic Disorder)
180SCN8A Syndrome (Genetic Disorder)
181Short Bowel Syndrome (短腸症)
182Smith-Magenis Syndrome (SMS) (史密斯-馬吉利氏症)
183Spina Bifida (SB) (先天性脊椎裂症)
184Spinal Muscular Atrophy (SMA) - Type 1 (脊髓肌肉萎縮症第1型)
185Spinal Muscular Atrophy (SMA) - Type 2 (脊髓肌肉萎縮症第2型)
186Spinal Muscular Atrophy (SMA) - Type 3 (脊髓肌肉萎縮症第3型)
187Spinalcerebellar Ataxia (SCA) - Type 2 (小腦萎縮症第2型)
188Spinalcerebellar Ataxia (SCA) - Type 3 (小腦萎縮症第3型)
189Spondyloepiphyseal Dysplasia Congenita (SEDC) (先天性脊椎骨骺發育不全症)
190Stat1 Immunodeficiency (Genetic Disorder) (Stat1免疫缺陷) (基因突變)
191Stiff Person Syndrome (SPS) (僵硬人症)
192Succinic Semialdehyde Dehydrogenase Deficiency (SSADH) (琥珀酸半醛脱氢酶缺乏症)
193Supernumerary Chromosome 8 Syndrome (Genetic Disorder)
**以上病種均由病人或其家屬於登記入會時提供。