RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 31 July 2025）

Total Members: 962

Full Members: 831

Individual: 822

Organizational: 9

Ordinary Members: 131

Types of rare diseases: 252

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

30Arthrogryposis Multiplex Congenita (AMC) (先天性多發性關節攣縮症)

31ATAD3A Syndrome (Genetic Disorder)

32ATR-X Thalassemia Syndrome (ATRX) (α地中海贫血X-連鎖智力障碍症)

33Atypical Hemolytic Uremic Syndrome (aHUS) (非典型溶血性尿毒症)

34Autoimmune Insulin Syndrome (胰島素自身免疫綜合症)

35Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) (Charlevoix-Saguenay型隐性痙攣性共濟失調症)

**The above types of diseases were provided by patients or their families at the time of membership registration.