RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 11 November 2024）

Total Members: 905

Full Members: 789

Individual: 780

Organizational: 9

Ordinary Members: 116

Types of rare diseases: 242

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

30ATR-X Thalassemia Syndrome (ATRX) (α地中海贫血X-連鎖智力障碍症)

31Atypical Hemolytic Uremic Syndrome (aHUS) (非典型溶血性尿毒症)

32Autoimmune Insulin Syndrome (胰島素自身免疫綜合症)

33Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) (Charlevoix-Saguenay型隐性痙攣性共濟失調症)

**The above types of diseases were provided by patients or their families at the time of membership registration.