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加入本會
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About RDHKOur Members
Numbers of Members（As of 24 June 2024）
Total Members: 848
Full Members: 754
Individual: 745
Organizational: 9
Ordinary Members: 94
Types of rare diseases: 229
Rare disease
141Multiple System Atrophy (MSA) - Pakinsonian Subtype (多重系統退化症-非典型巴金森症)
142Myasthenia Gravis (MG) (重症肌無力症)
143Myhre Syndrome (Myhre綜合症)
144Nemaline Myopathy (桿狀體肌肉病變)
145Neuroendocrine Tumor (NET) (神經內分泌腫瘤)
146Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)
147Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)
148Neuromyelitis Optica (NMO) (視神經脊髓炎)
149Nicolaides-Baraitser Syndrome (NCBRS)
150Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)
151Noonan Syndrome (努南氏症候群)
152Optic Neuropathy (視神經病變)
153Osteogenesis Imperfecta (OI) (成骨不全症)
154PACS1 Related Syndrome (Genetic Disorder)
155Paroxysmal Nocturnal Hemoglobinuria (PNH) (陣發性夜間血紅素尿症)
156Pemphigus Vulgaris (天皰瘡)
157Persistent Hyperplasia of Primary Vitreous (PHPV) (持續增生性原始玻璃體症)
158Peutz-Jeghers Syndrome (PJS) (黑斑息肉症候群)
159Phakomatosis Pigmentovascularis (PPV) (色素血管性母班症)
160Phenylketonuria (PKU) (苯丙酮尿症)