RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 11 November 2024）

Total Members: 905

Full Members: 789

Individual: 780

Organizational: 9

Ordinary Members: 116

Types of rare diseases: 242

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

141Mucopolysaccharidoses (MPS) - Type 3 (黏多醣症第3型)

142Mucopolysaccharidoses (MPS) - Type 4 (黏多醣症第4型)

143Mucopolysaccharidoses (MPS) - Type 4A (黏多醣症第4A型)

144Mucopolysaccharidoses (MPS) - Type 6 (黏多醣症第6型)

145Multiple Epiphyseal Dysplasia (MED) (多發性骨骺發育不全症)

146Multiple Pituitary Hormome Deficiency (MPHD) / Anterior Pituitary Hypoplasia (腦下垂體發育不全症)

147Multiple Sclerosis (MS) (多發性硬化症)

148Multiple System Atrophy (MSA) - Pakinsonian Subtype (多重系統退化症-非典型巴金森症)

149Multiple System Atrophy (MSA) - Type C (多重系統退化症-C型)

150Myasthenia Gravis (MG) (重症肌無力症)

151Myhre Syndrome (Myhre綜合症)

152Nemaline Myopathy (桿狀體肌肉病變)

153Neuroendocrine Tumor (NET) (神經內分泌腫瘤)

154Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)

155Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)

156Neuromyelitis Optica (NMO) (視神經脊髓炎)

157Nicolaides-Baraitser Syndrome (NCBRS)

158Niemann-Pick Disease Type C1 (NPC1) (尼曼匹克症C1型)

159Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)

160Noonan Syndrome (努南氏症候群)

**The above types of diseases were provided by patients or their families at the time of membership registration.