RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 29 April 2025）

Total Members: 940

Full Members: 811

Individual: 802

Organizational: 9

Ordinary Members: 129

Types of rare diseases: 247

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

141Mowat-Wilson Syndrome (MWS)

142Moyamoya Disease (毛毛樣腦血管病)

143Mucopolysaccharidoses (MPS) - Type 2 (黏多醣症第2型)

144Mucopolysaccharidoses (MPS) - Type 3 (黏多醣症第3型)

145Mucopolysaccharidoses (MPS) - Type 4 (黏多醣症第4型)

146Mucopolysaccharidoses (MPS) - Type 4A (黏多醣症第4A型)

147Mucopolysaccharidoses (MPS) - Type 6 (黏多醣症第6型)

148Multiple Epiphyseal Dysplasia (MED) (多發性骨骺發育不全症)

149Multiple Pituitary Hormome Deficiency (MPHD) / Anterior Pituitary Hypoplasia (腦下垂體發育不全症)

150Multiple Sclerosis (MS) (多發性硬化症)

151Multiple System Atrophy (MSA) - Pakinsonian Subtype (多重系統退化症-非典型巴金森症)

152Multiple System Atrophy (MSA) - Type C (多重系統退化症-C型)

153Myasthenia Gravis (MG) (重症肌無力症)

154Myhre Syndrome (Myhre綜合症)

155Nemaline Myopathy (桿狀體肌肉病變)

156Neuroendocrine Tumor (NET) (神經內分泌腫瘤)

157Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)

158Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)

159Neuromyelitis Optica (NMO) (視神經脊髓炎)

160Nicolaides-Baraitser Syndrome (NCBRS)

**The above types of diseases were provided by patients or their families at the time of membership registration.