RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 21 January 2026）

Total Members: 1,012

Full Members: 875

Individual: 866

Organizational: 9

Ordinary Members: 137

Types of rare diseases: 263

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

161Multiple Sclerosis (MS) (多發性硬化症)

162Multiple System Atrophy (MSA) - Pakinsonian Subtype (多重系統退化症-非典型巴金森症)

163Multiple System Atrophy (MSA) - Type C (多重系統退化症-C型)

164Myasthenia Gravis (MG) (重症肌無力症)

165Myhre Syndrome (Myhre綜合症)

166NAA-10-related neurodevelopmental syndrome (NAA10相關神經發育綜合症)

167Nemaline Myopathy (桿狀體肌肉病變)

168Neuroendocrine Tumor (NET) (神經內分泌腫瘤)

169Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)

170Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)

171Neuromyelitis Optica (NMO) (視神經脊髓炎)

172Nicolaides-Baraitser Syndrome (NCBRS)

173Niemann-Pick Disease Type C (NPC) (尼曼匹克症C型)

174Niemann-Pick Disease Type C1 (NPC1) (尼曼匹克症C1型)

175Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)

176Noonan Syndrome (努南氏症候群)

177Optic Neuropathy (視神經病變)

178Osteogenesis Imperfecta (OI) (成骨不全症)

179PACS1 Related Syndrome (Genetic Disorder)

180Paroxysmal Kinesigenic Dyskinesia (原發性陣發性動作型運動不良症)

**The above types of diseases were provided by patients or their families at the time of membership registration.