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加入本會
登記做義工
About RDHKOur Members
Numbers of Members（As of 31 July 2025）
Total Members: 962
Full Members: 831
Individual: 822
Organizational: 9
Ordinary Members: 131
Types of rare diseases: 252
Rare disease
75Ectodermal Dysplasia (外胚層發育不良症)
76Ehlers-Danlos Syndrome (埃勒斯-當洛二氏症)
77Emery-Dreifuss Muscular Dystrophy (EDMD)
78Eosinophilic Granulomatosis with Polyangiitis (EGPA) (嗜酸性肉芽腫性多血管炎)
79Epidermolysis Bullosa (EB) (表皮溶解水皰症)
80Epithelioid Hemangioendothelioma (EHE) (上皮樣血管内皮瘤)
81Erythromelagia (紅斑性肢痛症)
**The above types of diseases were provided by patients or their families at the time of membership registration.