RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 21 January 2026）

Total Members: 1,012

Full Members: 875

Individual: 866

Organizational: 9

Ordinary Members: 137

Types of rare diseases: 263

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

76Ectodermal Dysplasia (外胚層發育不良症)

77Ehlers-Danlos Syndrome (埃勒斯-當洛二氏症)

78Emery-Dreifuss Muscular Dystrophy (EDMD)

79Eosinophilic Granulomatosis with Polyangiitis (EGPA) (嗜酸性肉芽腫性多血管炎)

80Epidermolysis Bullosa (EB) (表皮溶解水皰症)

81Epithelioid Hemangioendothelioma (EHE) (上皮樣血管内皮瘤)

82Erythromelagia (紅斑性肢痛症)

**The above types of diseases were provided by patients or their families at the time of membership registration.