RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 2 Aptil 2026）

Total Members: 1,038

Full Members: 899

Individual: 890

Organizational: 9

Ordinary Members: 139

Types of rare diseases: 270

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

110Ichthyosis (斑色魚鱗癬症)

111Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)

112Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)

113Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)

114Idiopathic Thrombocytopenic Purpura (ITP) (自發性血小板缺乏紫斑症)

115IgG4-related Chronic Sclerosing Sialadenitis

116Interstitial Lung Disease (ILD) (間質性肺病)

117Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)

**The above types of diseases were provided by patients or their families at the time of membership registration.