About RDHKOur Members
Numbers of Members(As of 30 September 2025)
Total Members: 973
Full Members: 841
Individual: 832
Organizational: 9
Ordinary Members: 132
Types of rare diseases: 251
Rare disease
103Ichthyosis (斑色魚鱗癬症)
104Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)
105Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)
106Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)
107Idiopathic thrombocytopenic purpura (ITP) (自發性血小板缺乏紫斑症)
108IgG4-related Chronic Sclerosing Sialadenitis
109Interstitial Lung Disease (ILD) (間質性肺病)
110Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)
**The above types of diseases were provided by patients or their families at the time of membership registration.