RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 21 January 2026）

Total Members: 1,012

Full Members: 875

Individual: 866

Organizational: 9

Ordinary Members: 137

Types of rare diseases: 263

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

106Ichthyosis (斑色魚鱗癬症)

107Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)

108Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)

109Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)

110Idiopathic Thrombocytopenic Purpura (ITP) (自發性血小板缺乏紫斑症)

111IgG4-related Chronic Sclerosing Sialadenitis

112Interstitial Lung Disease (ILD) (間質性肺病)

113Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)

**The above types of diseases were provided by patients or their families at the time of membership registration.