RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 29 April 2025）

Total Members: 940

Full Members: 811

Individual: 802

Organizational: 9

Ordinary Members: 129

Types of rare diseases: 247

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

99Ichthyosis (斑色魚鱗癬症)

100Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)

101Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)

102Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)

103IgG4-related Chronic Sclerosing Sialadenitis

104Interstitial Lung Disease (ILD) (間質性肺病)

105Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)

**The above types of diseases were provided by patients or their families at the time of membership registration.