About RDHKOur Members
Numbers of Members(As of 11 November 2024)
Total Members: 905
Full Members: 789
Individual: 780
Organizational: 9
Ordinary Members: 116
Types of rare diseases: 242
Rare disease
96Ichthyosis (斑色魚鱗癬症)
97Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)
98Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)
99Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)
100IgG4-related Chronic Sclerosing Sialadenitis
101Interstitial Lung Disease (ILD) (間質性肺病)
102Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)
**The above types of diseases were provided by patients or their families at the time of membership registration.