RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 11 November 2024）

Total Members: 905

Full Members: 789

Individual: 780

Organizational: 9

Ordinary Members: 116

Types of rare diseases: 242

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

152Nemaline Myopathy (桿狀體肌肉病變)

153Neuroendocrine Tumor (NET) (神經內分泌腫瘤)

154Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)

155Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)

156Neuromyelitis Optica (NMO) (視神經脊髓炎)

157Nicolaides-Baraitser Syndrome (NCBRS)

158Niemann-Pick Disease Type C1 (NPC1) (尼曼匹克症C1型)

159Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)

160Noonan Syndrome (努南氏症候群)

**The above types of diseases were provided by patients or their families at the time of membership registration.