RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 16 June 2025）

Total Members: 940

Full Members: 811

Individual: 802

Organizational: 9

Ordinary Members: 129

Types of rare diseases: 249

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

157Nemaline Myopathy (桿狀體肌肉病變)

158Neuroendocrine Tumor (NET) (神經內分泌腫瘤)

159Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)

160Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)

161Neuromyelitis Optica (NMO) (視神經脊髓炎)

162Nicolaides-Baraitser Syndrome (NCBRS)

163Niemann-Pick Disease Type C1 (NPC1) (尼曼匹克症C1型)

164Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)

165Noonan Syndrome (努南氏症候群)

**The above types of diseases were provided by patients or their families at the time of membership registration.