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About RDHKOur Members
Numbers of Members（As of 30 September 2025）
Total Members: 973
Full Members: 841
Individual: 832
Organizational: 9
Ordinary Members: 132
Types of rare diseases: 251
Rare disease
171PACS1 Related Syndrome (Genetic Disorder)
172Paroxysmal Kinesigenic Dyskinesia (原發性陣發性動作型運動不良症)
173Paroxysmal Nocturnal Hemoglobinuria (PNH) (陣發性夜間血紅素尿症)
174Pemphigus Vulgaris (天皰瘡)
175Persistent Hyperplasia of Primary Vitreous (PHPV) (持續增生性原始玻璃體症)
176Peutz-Jeghers Syndrome (PJS) (黑斑息肉症候群)
177Phakomatosis Pigmentovascularis (PPV) (色素血管性母班症)
178Phenylketonuria (PKU) (苯丙酮尿症)
179Phosphatase and Tensin Homolog (PTEN) (Genetic Disorder) (磷酸酯酶與張力蛋白同源物) (基因病變)
180Pierre Robin Syndrome (PRS) (皮爾羅賓症侯群 )
181Pitt-Hopkins Syndrome (皮特-霍普金斯症候群)
182Polymyositis (多發性肌炎)
183Prader-Willi Syndrome (PWS) (小胖威利症)
184Primary Ciliary Dyskinesia (PCD) (先天性纖毛運動障礙症)
185Primary Hyperoxaluria Type 1 (PH1) (原發性高草酸尿症1型)
186Primary Immunodeficiency (PID) (原發性免疫缺陷病)
187Progressive Pseudorheumatoid Dysplasia (PPD) (進行性假性類風濕性骨發育不良症)
188Propionic Acidemia (丙酸血症)
189PTEN Hamartoma Tumor Syndrome (PHTS) (PTEN過誤腫症)
190Pulmonary Alveolar Proteinosis (PAP) (肺泡蛋白質沉著症)