RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 4 Agust 2026）

Total Members: 1,068

Full Members: 926

Individual: 916

Organizational: 10

Ordinary Members: 142

Types of rare diseases: 279

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

241Takayasu Arteritis (TA) (高安氏症)

242Tay Sachs (戴薩克斯症)

243TCF4 related Neurodevelopmental Disorder

244Tetratricopeptide Repeat, Ankyrin Repeat and Coiled-coil containing 2 (TANC2)

245Thalassemia Major - Type B (地中海貧血症乙型)重型

246TRIO and F-actin Binding Protein Syndrome (TRIOBP) (Genetic Disorder)

247Tuberous Sclerosis Complex (TSC) (結節性硬化症)

**The above types of diseases were provided by patients or their families at the time of membership registration.