RARE DISEASE HONG KONG

About RDHKOur Members

Numbers of Members（As of 25 November 2025）

Total Members: 998

Full Members: 863

Individual: 854

Organizational: 9

Ordinary Members: 135

Types of rare diseases: 260

Rare disease

ALL 1 2 3 8 A B C D E F G H I J K L M N O P R S T U V W X

255Xeroderma Pigmentosum (XP) (著色性乾皮症)

256X-linked Agammaglobulinemia (XLA) (X-連鎖無丙種球蛋白血症)

257X-linked Hypophosphatemic Rickets (XLH) (性聯遺傳型低磷酸鹽佝僂症)

258X-linked Myotubular Myopathy (XLMTM) (肌小管病變)

259X-linked Retinoschisis (XLRS) (Genetic Disorder)

260X-linked Thrombocytopenia (XLT) (Genetic Disorder)

**The above types of diseases were provided by patients or their families at the time of membership registration.