About RDHKOur Members
Numbers of Members(As of 24 June 2024)
Total Members: 848
Full Members: 754
Individual: 745
Organizational: 9
Ordinary Members: 94
Types of rare diseases: 229
Rare disease
181Sacral Chordoma (骶骨脊索瘤)
182Schaaf-Yang Syndrome (SYS) (Schaaf-Yang症候群)
183Schinzel Giedion Syndrome (SGS) (Schinzel Giedion綜合症)
184Sciatic Nerve Tumors / Schwannoma (坐骨神腫瘤)
185SCN1A Syndrome (Genetic Disorder)
186SCN2A Syndrome (Genetic Disorder)
187SCN4A Myopathy (Genetic Disorder)
188SCN8A Syndrome (Genetic Disorder)
189Short Bowel Syndrome (短腸症)
190Sialidosis Type 1 (涎酸酵素缺乏症第1型)
191Smith-Magenis Syndrome (SMS) (史密斯-馬吉利氏症)
192Spina Bifida (SB) (先天性脊椎裂症)
193Spinal Muscular Atrophy (SMA) - Type 1 (脊髓肌肉萎縮症第1型)
194Spinal Muscular Atrophy (SMA) - Type 2 (脊髓肌肉萎縮症第2型)
195Spinal Muscular Atrophy (SMA) - Type 3 (脊髓肌肉萎縮症第3型)
196Spinalcerebellar Ataxia (SCA) - Type 2 (小腦萎縮症第2型)
197Spinalcerebellar Ataxia (SCA) - Type 3 (小腦萎縮症第3型)
198Spinalcerebellar Ataxia (SCA) - Type 35 (小腦萎縮症 - 第35型)
199Spondyloepiphyseal Dysplasia Congenita (SEDC) (先天性脊椎骨骺發育不全症)
200Stat1 Immunodeficiency (Genetic Disorder) (Stat1免疫缺陷) (基因突變)
**The above types of diseases were provided by patients or their families at the time of membership registration.