About RDHKOur Members
Numbers of Members(As of 24 May 2024)
Total Members: 835
Full Members: 742
Individual: 733
Organizational: 9
Ordinary Members: 93
Types of rare diseases: 225
Rare disease
41Chronic Hemolytic Anemia (慢性溶血性貧血症)
42Chronic Inflammatory Demyelinating Polyneuropathy (CIPD) (慢性脫髓鞘性神經炎)
43Chronic Suppurative Osteomyelitis (慢性化膿性骨髓炎)
44Cockayne Syndrome (柯凱因氏症侯群)
45Coenzyme Q10 Deficiency-7 (Genetic Disorder)
46Collagen XII Myopathy (膠原蛋白XII缺失肌肉萎縮症)
47Complex Regional Pain Syndrome (CRPS) (複雜性局部疼痛症) / Reflex Sympathetic Dystrophy Syndrome (RSD) (交感神經失調症)
48Cone-rod Dystrophy (視幹細胞營養不良症)
49Congenital Bile Acid Synthesis (CBAS) (胆汁酸合成障碍)
50Congenital Glaucoma (先天性青光眼)
51Congenital Insensitivity to Pain with Anhidrosis (CIPA) (先天性痛不敏感症合併無汗症)
52Congenital Muscular Dystrophy (CMD) (先天性肌营养不良症)
53Cornelia De Lange Syndrome (CdLS) (狄蘭氏症侯群)
54Costello Syndrome (克斯提洛氏彈性蛋白質缺陷症)
55Cri-Du-Chat Syndrome (貓哭症)
56Crohn's Disease (克隆氏症)
57CTNNB1 Syndrome (Genetic Disorder)
58Cushing's Syndrome (CS) (庫欣氏症候群)
59Cystic Fibrosis (囊腫性纖維化)
60Dandy-Walker Syndrome (Dandy-Walker氏症候群)
**The above types of diseases were provided by patients or their families at the time of membership registration.