About RDHKOur Members
Numbers of Members(As of 24 May 2024)
Total Members: 835
Full Members: 742
Individual: 733
Organizational: 9
Ordinary Members: 93
Types of rare diseases: 225
Rare disease
61Ddx3x Syndrome (Genetic Disorder)
62Dermatomyositis (皮肌炎)
63DiGeorge Syndrome (DGS) (迪喬治症侯群)
64DNM1-L Syndrome (Genetic Disorder)
65Dravet Syndrome (DS) (卓飛症候群)
66Duchenne Muscular Dystrophy (DMD) (杜興氏肌肉營養不良症)
67DYRK1A Syndrome (Genetic Disorder)
68Ectodermal Dysplasia (外胚層發育不良症)
69Ehlers-Danlos Syndrome (埃勒斯-當洛二氏症)
70Eosinophilic Granulomatosis with Polyangiitis (EGPA) (嗜酸性肉芽腫性多血管炎)
71Epidermolysis Bullosa (EB) (表皮溶解水皰症)
72Epithelioid Hemangioendothelioma (EHE) (上皮樣血管内皮瘤)
73Erythromelagia (紅斑性肢痛症)
74Fabry Disease (法布瑞氏症)
75Facioscapulohumeral Muscular Dystrophy (FSHD) - Type 1 (面肩肱型肌肉營養不良症第1型)
76Familial Amyloid Polyneuropathy (FAP) (家族性澱粉樣物多發性神經病變)
77Fibrodysplasia Ossificans Progressiva (FOP) (進行性肌肉骨化症)
78Floating-Harbor Syndrome (FHS) (Floating-Harbor綜合症)
79Fragile X Syndrome (FXS) (X染色體脆弱症)
80Glioblastoma Multiforme (GBM) (膠質母細胞瘤)
**The above types of diseases were provided by patients or their families at the time of membership registration.