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加入本會
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About RDHKOur Members
Numbers of Members（As of 18 March 2024）
Total Members: 795
Full Members: 709
Individual: 696
Organizational: 9
Ordinary Members: 90
Types of rare diseases: 220
Rare disease
141Neurofibromatosis (NF) - Type 1 (神經纖維瘤第1型)
142Neurofibromatosis (NF) - Type 2 (神經纖維瘤第2型)
143Neuromyelitis Optica (NMO) (視神經脊髓炎)
144Nicolaides-Baraitser Syndrome (NCBRS)
145Non-infectious Non-Anterior (NINA) Uveitis (非感染性非前段葡萄膜炎)
146Noonan Syndrome (努南氏症候群)
147Optic Neuropathy (視神經病變)
148Osteogenesis Imperfecta (OI) (成骨不全症)
149PACS1 Related Syndrome (Genetic Disorder)
150Paroxysmal Nocturnal Hemoglobinuria (PNH) (陣發性夜間血紅素尿症)
151Pemphigus Vulgaris (天皰瘡)
152Persistent Hyperplasia of Primary Vitreous (PHPV) (持續增生性原始玻璃體症)
153Peutz-Jeghers Syndrome (PJS) (黑斑息肉症候群)
154Phakomatosis Pigmentovascularis (PPV) (色素血管性母班症)
155Phenylketonuria (PKU) (苯丙酮尿症)
156Phosphatase and Tensin Homolog (PTEN) (Genetic Disorder) (磷酸酯酶與張力蛋白同源物) (基因病變)
157Pierre Robin Syndrome (PRS) (皮爾羅賓症侯群 )
158Polymyositis (多發性肌炎)
159Prader-Willi Syndrome (PWS) (小胖威利症)
160Primary Ciliary Dyskinesia (PCD) (先天性纖毛運動障礙症)