About RDHKOur Members
Numbers of Members(As of 16 June 2025)
Total Members: 940
Full Members: 811
Individual: 802
Organizational: 9
Ordinary Members: 129
Types of rare diseases: 249
Rare disease
100Ichthyosis (斑色魚鱗癬症)
101Idiopathic Intracranial Hypertension (IIH) (特發性顱內壓增高症)
102Idiopathic Multicentric Castleman Disease (iMCD) (特發性多中心卡斯特曼病)
103Idiopathic Pulmonary Fibrosis (IPF) (特發性肺纖維化)
104Idiopathic thrombocytopenic purpura (ITP) (自發性血小板缺乏紫斑症)
105IgG4-related Chronic Sclerosing Sialadenitis
106Interstitial Lung Disease (ILD) (間質性肺病)
107Intravenous Leiomyomatosis (IVL) (静脉内平滑肌瘤)
**The above types of diseases were provided by patients or their families at the time of membership registration.