About RDHKOur Members
Numbers of Members(As of 4 September 2023)
Total Members: 744
Full Members: 662
Individual: 653
Organizational: 9
Ordinary Members: 82
Types of rare diseases: 206
Rare disease
165Sacral Chordoma (骶骨脊索瘤)
166Schaaf-Yang Syndrome (SYS) (Schaaf-Yang症候群)
167Schinzel Giedion Syndrome (SGS) (Schinzel Giedion綜合症)
168Sciatic Nerve Tumors / Schwannoma (坐骨神腫瘤)
169SCN1A Syndrome (Genetic Disorder)
170SCN2A Syndrome (Genetic Disorder)
171SCN8A Syndrome (Genetic Disorder)
172Short Bowel Syndrome (短腸症)
173Smith-Magenis Syndrome (SMS) (史密斯-馬吉利氏症)
174Spina Bifida (SB) (先天性脊椎裂症)
175Spinal Muscular Atrophy (SMA) - Type 1 (脊髓肌肉萎縮症第1型)
176Spinal Muscular Atrophy (SMA) - Type 2 (脊髓肌肉萎縮症第2型)
177Spinal Muscular Atrophy (SMA) - Type 3 (脊髓肌肉萎縮症第3型)
178Spinalcerebellar Ataxia (SCA) - Type 2 (小腦萎縮症第2型)
179Spinalcerebellar Ataxia (SCA) - Type 3 (小腦萎縮症第3型)
180Spondyloepiphyseal Dysplasia Congenita (SEDC) (先天性脊椎骨骺發育不全症)
181Stiff Person Syndrome (SPS) (僵硬人症)
182Succinic Semialdehyde Dehydrogenase Deficiency (SSADH) (琥珀酸半醛脱氢酶缺乏症)
183Supernumerary Chromosome 8 Syndrome (Genetic Disorder)
**The above types of diseases were provided by patients or their families at the time of membership registration.