About RDHKOur Members
Numbers of Members(As of 24 May 2024)
Total Members: 835
Full Members: 742
Individual: 733
Organizational: 9
Ordinary Members: 93
Types of rare diseases: 225
Rare disease
177Sacral Chordoma (骶骨脊索瘤)
178Schaaf-Yang Syndrome (SYS) (Schaaf-Yang症候群)
179Schinzel Giedion Syndrome (SGS) (Schinzel Giedion綜合症)
180Sciatic Nerve Tumors / Schwannoma (坐骨神腫瘤)
181SCN1A Syndrome (Genetic Disorder)
182SCN2A Syndrome (Genetic Disorder)
183SCN4A Myopathy (Genetic Disorder)
184SCN8A Syndrome (Genetic Disorder)
185Short Bowel Syndrome (短腸症)
186Sialidosis Type 1 (涎酸酵素缺乏症第1型)
187Smith-Magenis Syndrome (SMS) (史密斯-馬吉利氏症)
188Spina Bifida (SB) (先天性脊椎裂症)
189Spinal Muscular Atrophy (SMA) - Type 1 (脊髓肌肉萎縮症第1型)
190Spinal Muscular Atrophy (SMA) - Type 2 (脊髓肌肉萎縮症第2型)
191Spinal Muscular Atrophy (SMA) - Type 3 (脊髓肌肉萎縮症第3型)
192Spinalcerebellar Ataxia (SCA) - Type 2 (小腦萎縮症第2型)
193Spinalcerebellar Ataxia (SCA) - Type 3 (小腦萎縮症第3型)
194Spinalcerebellar Ataxia (SCA) - Type 35 (小腦萎縮症 - 第35型)
195Spondyloepiphyseal Dysplasia Congenita (SEDC) (先天性脊椎骨骺發育不全症)
196Stat1 Immunodeficiency (Genetic Disorder) (Stat1免疫缺陷) (基因突變)
**The above types of diseases were provided by patients or their families at the time of membership registration.